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Caring for a Loved One with Dementia: A Mindfulness-Based Guide for Reducing Stress and Making the Best of Your Journey Together, by Marguerite Manteau-Rao LCSW
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Review
“This book is an outstanding contribution to dementia care. Marguerite’s experience, understanding, and compassion shine through every page. She has done a stunning job of presenting the complexities of dementia and how to be a care partner with the support of a mindfulness approach. Organized and inspiring, anyone dealing with dementia will be immensely grateful for this book, surely destined to become a classic in the field.” —Olivia Ames Hoblitzelle, author of Ten Thousand Joys and Ten Thousand Sorrows“I highly recommend this exquisitely crafted, inspiring guide brimming with practical wisdom that flows from the depths of the author’s authentic mindfulness practice and insightful dementia care-partnering experiences. The skillful dementia care principles seamlessly interwoven with mindfulness practices offer readers an opening in the heart and mind for extraordinary possibilities through the power of caring presence. This is a must-read for all who envision and feel called to actualize a ‘radical new way for being more fully present for ourselves, as well as for the person with dementia.’” —Maribeth Gallagher, DNP, FAAN, director of the dementia program at Hospice of the Valley in Scottsdale, AZ, mindfulness-based stress reduction (MBSR) practitioner and teacher, and mindfulness-based dementia care teacher“With this clear and compelling guide to mindfulness practices, Marguerite Manteau-Rao fills an important void in the education of those who support people living with dementia. It is only by learning to be fully present that supportive partners can transcend communication barriers, understand distress, and create a pathway for their own well-being as well.” —G. Allen Power, MD, FACP, author of Dementia Beyond Drugs and Dementia Beyond Disease“Marguerite has designed a bridge for us to cross into a new era of understanding in dementia care where conscious caregiving and practices for cultivating awareness, compassion, and mindfulness are the new normal and standard of care. She beautifully illustrates the power of mindfulness practice to transmute caregiver confusion and dis-ease, which can be as challenging and debilitating as, if not more so than, dementia itself.”—Laura E. Rice-Oeschger, LMSW, coordinator of the Dementia Wellness Initiative at Michigan Alzheimer’s Disease Center, University of Michigan Department of Neurology“Caring for a Loved One with Dementia offers new hope that today’s dementia caregiver can find a sense of peace in the difficult journey of dementia caregiving. Manteau-Rao does a masterful job introducing mindfulness, a practice that will be new to most caregivers. Her book provides real-world examples of where mindfulness can make an impact, as well as concrete suggestions for practicing mindfulness regularly. Caregivers who incorporate her lessons into their life will enjoy long-lasting benefits not just for themselves, but also for their care recipient.”—Angela Taylor, director of programs at Lewy Body Dementia Association“Marguerite has beautifully matched her own experience as a caregiver for a loved one with dementia with her mindfulness knowledge. The result is a book that meets the practical and emotional needs of family caregivers challenged by dementia. We dementia caregivers know all about stress, fatigue, grief, and sadness. This book opens us up to the possibility of moving beyond that by clearing our minds, opening our hearts, and partnering with our loved ones.”—Robin Riddle, CEO of Brain Support Network, Parkinson’s caregiver program facilitator at Stanford University, and primary caregiver for her late father with progressive supranuclear palsy“Marguerite Manteau-Rao’s mindfulness guide for caregivers helps outline the ‘sweet spot’ between the practice of mindfulness and caring for a loved one with dementia.” —Elizabeth Edgerly,PhD, chief program officer of the Alzheimer’s Association, Northern California and Northern Nevada Chapter“In this beautiful book, Marguerite applies her experience and compassion to gently guide a care partner as they learn to transform grief and loss into wisdom with loving-kindness. This book is the necessary platform for building a new perspective on changes we frequently face in the final phases of life. Each chapter provides another link in the lifeline that prevents drowning in our own thoughts and emotions.” —Catherine Madison, MD, medical director at Ray Dolby Brain Health Center in San Francisco, CA“Marguerite Manteau-Rao has written an essential guide for caregivers supporting someone living with a dementia-related illness. A generous and skillful teacher, Marguerite shares practices that are beneficial and healing. Caring for a Loved One with Dementia is certain to help ease a seemingly impossible journey.” —Roy Remer, director of the Guest House and volunteer programs at Zen Hospice Project in San Francisco, CA, and teacher of mindfulness practices for professional and informal caregivers
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About the Author
Marguerite Manteau Rao, MS, MBA, LCSW, is a licensed clinical social worker specializing in bringing new, innovative solutions to the field of dementia care. Marguerite's dementia advocacy work is inspired by her experience as a long-distance caregiver for her mother, and thousands of encounters with persons with dementia and their family members. She is the CEO of the Presence Care Project, and the founder of the Mindfulness-Based Dementia Care (MBDC) program, first incubated at the Osher Center for Integrative Medicine at the University of California, San Francisco. She is also the co-founder of Neurocern, a software company aimed at empowering dementia caregivers with neuroscience-based, person-centered care solutions. Marguerite is a Huffington Post contributor.
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Product details
Paperback: 200 pages
Publisher: New Harbinger Publications; 1 edition (February 2, 2016)
Language: English
ISBN-10: 1626251576
ISBN-13: 978-1626251571
Product Dimensions:
5.9 x 0.7 x 8.9 inches
Shipping Weight: 12.6 ounces (View shipping rates and policies)
Average Customer Review:
4.4 out of 5 stars
28 customer reviews
Amazon Best Sellers Rank:
#88,095 in Books (See Top 100 in Books)
I have one parent suffering from mid-stage dementia and the other suffering from the slow but steady loss of their loved one and the burden of caretaker duties. This book has been my mother's go-to, not just for knowledge as a caregiver, but also a reference when she feels overwhelmed or lost in what has become her new life. When she feels the weight of it all, she goes back and re-reads sections of the book and regains her mental strength to cope. If you know someone struggling with their caregiver role, or is just entering the role now, you can't do them a bigger favor than putting this book in their hands.
Each case of Alzheimer's disease kills two people. The person with the disease and the caregiver. This book offers an approach to caregiving that might help the caregiver survive and also improve his or her skill in caregiving. There is no magic solution for saving the two people being devastated by the brain disease. So if you're in this situation you need to try anything that offers any hope at all. This book I believe might help you on your long difficult dementia journey. You might also find "The 36-hour Day" by Nancy Mace and Peter Rabins a helpful book.I wish you the best of luck on your hard journey!
I have been caring for my husband, who has Lewy Body Dementia, for more than ten years. Books for caregivers always tell me to take good care of myself by eating right and getting a manicure. This book goes so much deeper, to the heart of anxiety. Suffering is wishing my life to be other than it is. Mindfulness (which is taught here in small steps) reveals how to be more at ease in the moment. Both when I am with my darling and when I am with myself. I recommend this book very highly for individuals and for professionals in the "memory care" fields. Wish I had it earlier.
This book has really helped me be more present with my mother. I am calmer when I visit her at the nursing home. I feel I am better able to relate to her and connect with the other residents. I appreciated the author's description of Parkinson's dementia and how she differentiated it from Alzheimer's. She helped me understand the fluctuations that go with Parkinson's dementia.I also appreciated the advice to go with your loved one's reality and not try to force them into your reality. I feel like this insight has helped me have much less conflict with my mother.Great resource for those wanting to apply mindfulness practices with those you love who have dementia.
I have taken care of my mother for 16 years. She's now 104 and---though not yet suffering from full dementia--sometimes lives in a fantasy world, especially upon first awakening. The compassionate approach of this book has helped immensely.
This is a wonderful book for anyone who deals with someone diagnosed with dementia. It is a hands-on handbook that is clear, concise, and practical. Many of the most important points are repeated and reinforced simply and lovingly. I recommend this book to anyone who has had experience in this area as well as newcomers. There is something for everyone in it!
Offers a compassionate and more helpful approach to conceptualizing behavior of loved one with dementia. This, in turn, decreases negative emotionality in caregiver's understanding and reaction to challenging behaviors.
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